Nine-year-old twins suffer from rare condition meaning their frizzy … – The Sun

NINE-year-old twins Agnetha and Anja Norendal suffer from a rare condition meaning their wild blonde hair is impossible to tame.

The girls are two of around 100 children documented around the world as having uncombable hair syndrome (UHS), which means their locks are constantly frizzy and static.

 Twins Agnetha and Anja Norendal, nine, are believed to have uncombable hair syndrome, which means their locks are impossible to tame
Twins Agnetha and Anja Norendal, nine, are believed to have uncombable hair syndrome, which means their locks are impossible to tame

Their mum Angela, 52, from Cockermouth, Cumbria, believes they are the only twins in the world with the syndrome.

“I’m really keen to find out if there are any other twins out there with it,” she said.

“I think they might be the only ones. It’s such a rare condition as it is.

“People around town where we live are used to them, but if we go elsewhere, the amount of people that stop and stare is unbelievable.

“We constantly get people asking for photos, or to touch the girls’ hair.

“They didn’t mind the fuss when they were little, but now they don’t like it as much.”

 Mum Angela, pictured with the twins, washes their hair just once a week to avoid it becoming matted
Mum Angela, pictured with the twins, washes their hair just once a week to avoid it becoming matted

As the youngsters started sprouting hair, Angela noticed that it had an oddly coarse texture.

Then, after bringing them along to a routine appointment with her other daughter Yannika, 20, a doctor remarked on their unusual tresses, saying she thought they may have UHS, also known as spun-glass hair.

A sample of each of their hair was taken away for testing, and though no formal diagnosis has been made, the family are convinced the doctor was right.

“I don’t know what else it could be. I think it affects the colour too, as they have the same white blonde shade as a lot of other children with UHS,” said Angela.

 Anja and Agnetha have only had three haircuts in their life because it grows so slowly
Anja and Agnetha have only had three haircuts in their life because it grows so slowly

As their hair grows exceptionally slowly, the twins have only had three haircuts in their lives, snipping off a total of around two inches.

Their mum can only wash their hair once a week, as, though it’s normally soft to the touch, anything more makes it become matted.

“We hardly use any shampoo, as that makes the frizz worse. I’ll use a lot of conditioner, though. We get through a bottle a week,” said Angela.

Angela is able to get a brush through her girls’ unruly locks, but must use a special afro comb.

 Agnetha and Anja pictured dressed up for Halloween in gory doctor's costumes
Agnetha and Anja pictured dressed up for Halloween in gory doctor’s costumes

Uncombable hair syndrome (UHS) is a condition that is characterised by dry, frizzy hair that cannot be combed flat.

This condition, which is caused by a gene mutation, develops in childhood, often between infancy and age three, but can appear as late as age 12.

Affected children often have light-coloured, blonde hair.

The hair does not grow downward but out from the scalp in multiple directions.

Despite its appearance, the hair is not fragile or brittle, and it grows at a normal or slightly slower rate.

Only scalp hair is affected in uncombable hair syndrome.

For unknown reasons, this condition usually improves over time.

By adolescence individuals with UHS have hair that lies flat and has normal or nearly normal texture.

 

Yannika is also a great help, scouring the internet for tips and tricks.

Through this, the family have been put in touch with a number of other UHS families from around the world.

“It’s nice to be able to speak to people who understand, but I wouldn’t say the syndrome has massively impacted the girls’ lives,” said Angela.

“They’ve never had any negative comments. The kids at their school are all great about it.

 Mum Angela says the youngsters attract curious glances when they’re out together
Mum Angela says the youngsters attract curious glances when they’re out together

“Plus, they love their hair. They wouldn’t change it for the world, and this way, they’ll always stand out in a crowd.”

From their online research, the family understand that, with UHS, the hair can straighten out in time as it grows longer and weighs itself down.

For now though, the girls are happy showing off their locks, which they like wearing down or styled into a bun.

“They have straightened it a couple of times for special occasion, but I don’t like them messing with their hair too much so young,” said Angela.

“They’re very proud of their hair, and love that they both have it.”

Meanwhile, blonde two-year-old Jaili Lamb also suffers from UHS.

 Anja and Agnetha with their big sister Yannika who sources tips and tricks online to help their mum manage the girls’ hair
Anja and Agnetha with their big sister Yannika who sources tips and tricks online to help their mum manage the girls’ hair